The Fred Foundation

Category: Newsletters

Recent quotes!

‘Thank you from the bottom of my heart. Your charity helped my son. He is verbal and excelling in life. Your funding helped me win a tribunal to give him the support he needed. Thank you!!!’ ANON

‘We will never forget how much your charity helped our J xx’

Sponsor Fred’s dad

Many of you will know that this charity was named after Fred, who is the first child we helped. Although Fred no longer receives any funding from us, he is happily ensconced in a great school, his amazing family remain constant supporters and fundraisers. In less than 2 weeks time, on Sunday October 9th Duff, Fred’s dad, will be running the Royal Parks half marathon on behalf of The Fred Foundation. No matter how fit you are it is always an effort to get geared up for such a long run, and he is making this effort because he knows how tough a couple of years it has been, for fundraising but most especially for our families. Please support us by sponsoring him via the link below. (All funds raised go to our families, minus a tiny amount for our accountant!)                       

Duff’s running The Royal Parks Half Marathon (Fred’s Dad)

I first ran the Royal Parks Half for The Fred Foundation 10 years ago and this year I’ll be doing it again.  The course hasn’t got any shorter and I don’t seem to be any younger but I’m still proud to be running for The Fred.  

The  charity, inspired by my son Fred, has been supporting children with complex autism and their families since 2007.  

It helps fund education programmes that allow children with complex autism to reach their potential through individualised, specialised programmes that match their needs instead of a ‘one size fits all’ approach.  Education is the only commonly accepted intervention for complex autism and in every case, the early years are critical to finding that child again and unlocking their world. 

The recent pandemic has highlighted, with sometimes heartbreaking results, how lack of the right support can cause immense suffering, not only to children with complex autism, but also their families.

Please donate what you can here – it will help The Fred Foundation and also inspire me to get round!


Donating through JustGiving is simple, fast and totally
secure.  Once you donate, they’ll send your money directly to The Fred Foundation and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer.


Felicity Ellacombe writes ‘Lucinda and Gilbert are running for Fred in the Royal Parks Half Marathon on the 11th April. This will be the first fundraising event we have been able to hold for a year, due to Covid. Both of them will be running in their home areas instead of through the Parks. If you would like to support them here are the links.

Our families have been having a tough time during the pandemic and sadly we have not been able to help them very much. Lucinda has described the problems very clearly in one of her recent posts.’

“Many children with complex autism keep their lives rigid and routine-led to help them feel in control of a world they do not understand. Families have suffered greatly during the pandemic because their autistic children/young people, often with very little speech and learning difficulties, do not understand why they cannot stick to the routines that help them feel safe. If you have complex autism – and will never understand what a virus is – you think it’s your mum, dad or caregiver stopping you doing all your usual activities. Can you imagine the impact of this on parents (the majority of them single) for months on end trying to cope with their children’s pain and lack of understanding every single day alone with no break – often sleep deprived?

Many neurotypical people will have mental health issues due to Covid, but at least they know why it’s happening and what a virus is.

I will be thinking of a particular person as I run/walk/stagger. Many of you may have read about the despair of a friend Olga Voronina/Freeman who loved her son who had complex autism SO dearly, but was taken to the brink during Covid. I will be thinking of Olga, my Fred and all of the families who’ve suffered so much during Covid – and continue to do so. Every donation goes straight to the families via The Fred Foundation and nothing is swallowed up by admin costs. Not many charities can say that.” x