RSS

BOOK IN ADVANCE FOR HENRY NORMAL BENEFIT – MANY THANKS www.justgiving.com/henrynormalfred

0 Comments | This entry was posted on Sep 22 2016

HOW TO BOOK YOUR PLACE(S) FOR Henry Normal BENEFIT FOR THE FRED

0 Comments | This entry was posted on Sep 17 2016

Please go onto www.justgiving.com/henrynormalfred and write your name(s) next to your payment. Venue: Jordans Village Hall, Green West Road, Jordans, Buckinghamshire HP9 2SY £10.00 (includes first drink!)  Date: Mon 10 October 8-9.30pm (including interval) Then we will put your names on the door. No tickets will be issued. Thanks so much.

Alternatively, if you aren’t able to  pay on-line,  please pay in the Jordans village shop thank you to Emma Holdsworth and your name(s) will be put on the door after payment.

Nearest train station : Seer Green & Jordans  Approx 10 minutes walk

Or – Gerrards Cross and Beaconsfield stations – 10 min taxi ride from there

All trains come out of Marylebone if coming from London.

Approx. 20 mins. by car  from West London

Henry Normal, co-writer of The Royle Family and other comedy hits, beautifully folds in the pathos as he talks about his son who has ‘mildly severe’ autism
THEGUARDIAN.COM|BY HANNAH VERDIER

HENRY NORMAL BENEFIT FOR THE FRED ON 10/10/2016 AT 8PM IN JORDANS VILLAGE HALL, BUCKS

0 Comments | This entry was posted on Sep 14 2016
Moving and cheery ... Henry Normal, creator of A Normal Family.
Moving and cheery … Henry Normal, creator of A Normal Family. Photograph: David Sandison

It’s been 20 years since Henry Normal’s poetry got an airing on the wireless, but A Normal Family (Radio 4) is so moving and cheery it’s worth the wait.

Normal, who’s perhaps best known for co-writing The Royle Family and The Mrs Merton Show, goes back to his roots in a show that’s part stand-up, part poetry recital and a total outpouring of love for his autistic son Johnny.

“I remember saying to myself that he was going to have a better life than me,” says Normal, voice cracking with emotion as he recalls seeing his newborn baby Johnny for the first time. “Things that had held me back wouldn’t hold him back. I’d see to that.”

As the live audience falls silent, Normal times his brightening of the mood to comic perfection. “I’ve brought along a toilet roll, just in case,” he jokes. Johnny went to the zoo as a child and his favourite bit was a monkey bin; now his parents celebrate small victories, like the moment when he behaved like a typical teenager, shouting for the iPad. He’s a happy boy most of the time and his family tried everything to make things right. “Music therapy, art therapy … and of course swimming with dolphins,” says Normal. “Like any parent, we’d have skydived playing the ukulele if it would help.”

It’s a rare and lovely thing: half an hour of radio that stops you short, gently demands your attention and then wipes your tears away while you have to have a little sit down. The poems are succinct, heartrending and peppered with gentle punchlines. In King Canute Should Have Checked The Tides, Normal pays tribute to his family’s strength. “Bring on your highest wave,” he says. “The glory is ours. We live here. We own this weather.”

Cheer her on!

0 Comments | This entry was posted on Apr 23 2016

If you are attending the Marathon in London tomorrow, please cheer on Lucinda if you see her. She is bib number 52983. You can download an app to see where she is . Of course you can still donate to support her as well via the Virgin Money site.

http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=fredfoundation

We might pass the £15,000 mark as we are very close!! Thank you so much if you have already donated. Over the coming weeks I will be posting the comments of the families who directly benefited from your donations, so ‘Follow’ our site and you will alerted to the posts.

Marathon news -help us reach £10,000

0 Comments | This entry was posted on Apr 18 2016

LONDON MARATHON TRAINING SO FAR– BY FRED’S MUM http://uk.virginmoneygiving.com/fredfoundation

I did my last longest run a couple of weeks ago early on a Sunday morning. Moving silently and carefully around the kitchen, getting ready to go I heard a voice behind me, “what’s happening what’s happening?” It was my autistic son Fred whom my creeping around had still woken up.

His terrified faced, eyes welling with tears, all 6ft 3 of him completely naked, made my heart break anew at his vulnerability. I guided him back to his bedroom saying, “Daddy’s in bed, twins are sleeping, Mummy’s going for a run don’t worry darling”.

He got back into bed and then said even more desperately, “What’s happening, what’s happening? Mummy say!.” I repeated it back exactly as I had said it before. “What’s happening, what’s happening?” only came again.

As I repeated back exactly the same explanation a number of times, now close to tears myself, I thought I can’t do this 22 miles today. I’m not in the right frame of mind. Then, he seemed to quieten and lie back and I went.

I began to run, turning to look back at his bedroom window. His pale face was watching me through half-opened curtains and I waved. He didn’t draw the curtain back across until I had gone. I doubled back to check. The curtains were closed.

Now you might think oh well he just didn’t want her to go out like any young child.

My son is 17 and his autism means he just doesn’t understand the world. If things don’t happen in exactly the way he expects them to (and mainly you’re guessing at that all the time because he can’t tell you) then he feels utterly petrified at the uncertainty. Still a little scared boy, a boy who makes routines out of routines.

I know all of this, all of the time, but, seeing his pain doesn’t get any easier. God knows who will care for him after I’m gone is a constant in my head and today his naked vulnerability gets to me more than other days.

I turned my music up very loud.

Later…..back at home thinking ‘how the hell do I run 26 miles on the day after that 22 nearly killed me’, this note pinged up on my donation page.

8.04.16 GOOD LUCK WITH THE RUN AND THANK YOU FRED FOUNDATION FOR ALL THAT YOU HAVE DONE FOR OUR FAMILY WITHOUT YOU JOEL WOULDN’T BE IN THE SCHOOL AND GETTING THE PROVISION HE HAS BENEFITED FROM SO MUCH.

Better do it then.

http://uk.virginmoneygiving.com/fredfoundation

Why support us?

0 Comments | This entry was posted on Apr 17 2016

I am sure you get many requests for money from Charities far and wide. Why should you support us? Here is one letter that I received from a mother we recently gave a grant to.

I got an email on a Sunday morning as I calculated my personal funds. As a single parent with three young children one with autism.
I found ABA by doing research, out of desperation. Who could help my child?! My GP had no answers, the doctors who diagnosed him had no answers. All they could talk about was speech delay and he didn’t even get one to one speech therapy. My sons behaviour had turned our lives upside down. A simple visit outdoors or visiting friends became impossible. I had no one to turn to. I could not afford ABA. However we needed it. It answered all the questions I had. The consultant became my saviour. As a mother I almost became depressed. My son would have two long meltdowns. I had no idea what to do. With ABA we slowly got a life again. ABA is and was vital for our family. I had to take funds from my other children, no days out, no birthday parties and clothes all from charity shops. I also reached a point where I could no longer afford ABA tutors. I put my young daughter with a childminder £6 per hour and ABA tutors start from £10 per hour and I started tutoring my son. The pressure became too much.
I had to fight for my son. He needs ABA. Two years of fighting for ABA. Then without funds I literally felt as though I was in a battle and I had no sword. After all ABA tribunals are evidence based. As I almost gave up,cornered with no options. The Fred Foundation gave me £2000. I heard “you must fight on! do not give up”.
A million thank you’s is not enough. I am a fighter and I could not do this with out your help.
Thank you for believing in us, my son is not disabled he is different.

We try and give sufficient funds to allow a family to pay for enough ABA so that they have the irrefutable evidence needed to persuade the LEAs to pay for the service themselves. A good number of families have succeeded thanks to our help. Fred’s Mum is running the marathon this year and on our Justgiving page we spotted a familiar name – a family we had helped some time ago. Here is what they said –

16.04.16 Good luck with the run and thank you Fred Foundation for all that you have done for our family without you Joel wouldn’t be in the school and getting the provision he has benefitted from so much.

We regularly run out of funds and have a long list of families waiting for help. We are the only charity doing this job although a much larger charity Caudwell Children often helps our families as well. We have virtually no administrative costs so the money you donate goes straight through to the families.Please consider donating to us today.

THANKS SO MUCH FOR ALL THE DONATIONS SO FAR 2 WEEKS TO GO! – I AM FRED’S MUM AND I AM RUNNING THE LONDON MARATHON TO HELP THE FRED FOUNDATION. A CHARITY INSPIRED BY MY WONDERFUL SON.

1 Comment | This entry was posted on Mar 10 2016

http://uk.virginmoneygiving.com/fredfoundation  Last Mothering Sunday I ran past restaurants crammed with families and it got me thinking how training for a Marathon is easier than looking after a severely autistic child.

I was reminded that not only was I running to help children like my son reach their potential by helping them get the right support and education.  BUT I was running to give other MOTHERS a reason to carry on by giving them HOPE.

The majority of mums of complex autistic children are single mums* who often cannot leave the house because of their children, let alone go into a restaurant, and will never experience an outing on Mother’s Day or any of the stuff you take for granted. (*It is estimated by NAS that 80% of partnerships will break down).

In case you didn’t realise, and excuse me if you do, looking after a severely, complex child with autism is no quirky ‘Dog in the Night Time’ stuff.

Motherhood of a severely, complex autistic child is not only an achievement of sheer physical and mental strength, it is an achievement of the heart.   Without heart a mum wouldn’t do it and in many cases worn down over time, without help, no longer can. A daily struggle that has been officially compared to the same level of stress that combat soldiers experience on the battlefield (please google it’s there).

I feel to brush this under the carpet and to not talk about this openly does a tremendous disservice to all the mums struggling for support. Some of whom, confined to their homes with their children for years, wracked with desperation and lack of sleep (often autistic children don’t sleep at night) have jumped off bridges and taken their poor children with them.

I have struggled and fought the authorities for the right support to look after my son for 16 years. A few years ago it had got to the stage where I wasn’t actually able to leave the house to do anything because I couldn’t keep him or his poor siblings safe out of it . My son was in a very bad place and his siblings and I were confined to the house for at least a year and a half. I spent all of my time trying to keep them alive.

Struggling to keep all of them alive might sound overly dramatic, but, to give you one small example If our strong 6ft 2 boy with the mind of a two year old, decided to run into the middle of the road and touch the white lines, he would do so and I couldn’t stop him. If he decided he wanted to go the other way on the motorway he would climb through into the front and take the wheel whilst his siblings sat screaming on the back seat. Yes, that happened, and, even though the right people knew that was happening, I didn’t actually get any help until an accident happened in our house and it catapulted us onto their radar. Luckily no-one died and as a result my son is at the most amazing residential school now.

When you have seen a child like mine, so unhappy and damaged by lack of support, it would make you run forever to help them or even run away – many parents can’t stand it any more and if the right help and support doesn’t get to them in time often do. The majority of the complex children at my son’s school have no parents any longer and are in Care.

The Fred Foundation was founded to help families fight on to get the right support and education their children sorely need and so gives them HOPE .

A LIFE WITHOUT HOPE CAN DRAIN THE STRONGEST SOUL.

My page:http://uk.virginmoneygiving.com/fredfoundation

If you want to know more about what the charity does to support families to fight on please go to www.thefredfoundation.org The section Faces of Autism and A Day in the Life diary will tell you how it is if you want to know more.

 

 

.

 

 

I’ve just run 15 miles…..it doesn’ t get any easier. Any pennies you’ve got, no matter how few, sling ’em my way. Thanks

0 Comments | This entry was posted on Feb 02 2016

MAD BUT DETERMINED…

Lucinda Borer is raising money for The Fred Foundation by taking part in the 2016 Virgin Money…
UK.VIRGINMONEYGIVING.COM|BY LUCINDA BORER

LUCINDA IS RUNNING THE LONDON MARATHON….. HELP..

0 Comments | This entry was posted on Jan 01 2016

 http://uk.virginmoneygiving.com/fredfoundation

 

MAD YES BUT DETERMINED TO DO IT FOR THE FRED FOUNDATION.  

My boy and autistic children like him feel stress every moment of every hour of every day because they don’t understand the world.  I shall be thinking of him every step of the way.

Imagine the stress you feel during an important interview.  Then imagine feeling like this all the time.  This might go some way toward helping you see what it feels like not to understand the world and everything in it.

The Fred Foundation helps children with autism by helping their families fight for the right education as opposed to a ‘one size fits all’ approach.   An education which can help them understand the world and, crucially, unlock their potential. Visitwww.thefredfoundation.org

Will you support me along the gruelling 26 miles by helping children like my boy by donating as little or as much as you wish?  Every single penny counts.

Enough said. Thanks so much.

http://uk.virginmoneygiving.com/fredfoundation

WELSH 300’S FOR THE FRED…..the guys did it! #ULTIMATEHELLWEEK….or 24HRS?

0 Comments | This entry was posted on Sep 21 2015

This is really great video guys – Tom Crichtonl Tom Mackenzie Sam Loramet al