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I don’t think there’s much “I wouldn’t have it any other way” or ‘celebration of quirkiness’ going on here and I’m glad – not for this poor family – but it’s the truth for many who get no help or the right support and it needs to be out there.

0 Comments | This entry was posted on Jul 12 2016

http://gu.com/p/4nmmg/stw

When Sarah’s son Robbie was diagnosed with autism, aged four, she swore she would always protect and care for him. But 10 years on, she is in need of protection herself
THEGUARDIAN.COM

Thanks

0 Comments | This entry was posted on Jul 05 2016

We have recently given out a number of  grants to families.The money all came from the donations you made towards Lucinda running the Marathon. Here is a thank you we have already received.

Thank you so much for our recent grant. This money has helped us secure a place on the R. S. workshop being run by my ABA therapist in November. It has also covered the last 2 sessions and the remainder is going towards an intensive Summer ABA
Programme to get Rob out of nappies before school and expand on his talking as he has started using vocal communication. I am over the moon with his progress.  Thank you.

What would Brexit mean for social care, NHS, and disabled people? ?

0 Comments | This entry was posted on Jun 16 2016

Click on this link to read more  https://www.theguardian.com/society/2016/jun/14/brexit-nhs-health-social-care-disabled-people-eu-referendum

Alongside the economy and immigration, the NHS has emerged as a key battleground in the EU debate. That is because the leave campaign decided early on to deploy the health service as a core argument in their plea to voters. Leave leaders Boris Johnson and Michael Gove have said consistently since campaigning began in April that Brexit could free up up to £8bnextra a year to spend on the NHS.

Leaving the EU would not, however, provide more money to spend on the NHS, according to the Institute of Fiscal Studies. “Rather, it would leave us spending less on public services, or taxing more, or borrowing more.”

Labour has dismissed the leave campaign’s claim of a bigger NHS budget as “misleading, simplistic and complete and utter nonsense”. Its own analysis concludes that a post-Brexit economic slump could force the government to cut the Department of Health’s budget by £10.5bn – the equivalent of every hospital in England having to shed 1,000 nurses and 155 doctors.

xxxx

People dont believe us when we tell them what parents have to go through but …..

0 Comments | This entry was posted on Jun 14 2016

People don’t believe us when we tell them what families have to go through to get the correct provision for their child. This article highlights the problem very nicely so please do share.

Baker Small apologises after series of tweets appeared to gloat at parents who failed to win funding of their children’s special needs provision
THEGUARDIAN.COM|BY AMELIA GENTLEMAN

http://gu.com/p/4yx32/sbl

THANKS SO MUCH GUYS #Fredland50….whilst everyone having a nice lazy bank holiday weekend sipping rose etc…….

0 Comments | This entry was posted on May 29 2016

They did it!

“105,456 steps. 53.87 miles. 21 hours 39 mins. Thanks for all the support and donations @SMG_London #Fredland50”
TWITTER.COM|BY TOM MACKENZIE

Come on guys – Doing it again for The Fred #Fredland50

0 Comments | This entry was posted on May 27 2016

As you can probably tell from this photo these guys are totally amazing and are now on the train to The Lakes They’ve raised £2,000 already on this escapade, and well in excess of £5,000 on their last three fundraisers!‪#‎Fredland50‬.

Renuke Manodha Samarasinghe's photo.
Renuke Manodha Samarasinghe with Tom Crichton and 3 others.

4 hrs · London ·

Bags packed, bellies full, legs prepped (not), T-Mack’s game face on, Lakeland50 we are comin’ for you! ‪#‎Fredland50‬ find out about our challenge here – http://bit.ly/Fredland50

Lakeland 50

0 Comments | This entry was posted on May 27 2016

The team from Mediavest have decided to complete another challenge for The Fred Foundation. last year they staggered through the 3 Peaks Challenge. Here is what they have to say….

“So… after about 40 miles of walking and 3000m of ascent last year coupled with sleep deprivation, body’s breaking down and the Welsh weather (see it all here: https://vimeo.com/139697919) it would be foolish to attempt a seemingly longer, physically more demanding challenge this year.

But that is exactly what we are doing. Introducing The Lakeland 50.

50 miles. 3100m of ascent. 24 hours. All in the picturesque setting of the Lake District. Starting at Dalemain House and walking 50 miles to Coniston, it’s the UK’s premier ultra trail challenge and has been described as “one of the greatest ultra running and walking challenges in Europe” so it should be a breeze.

If signal permits we’ll be keeping everyone updated on P Dog moaning about his weak muscles, Sam’s shit chat and Tom Crichton’s sleep deprived animal spotting with #Fredland50.

Any donation, no matter the amount, will make a difference. “Please donate here: https://www.justgiving.com/lakeland-50-shades-of-pain

They are on the train up there right now. Good luck  Tom M, Tom C, Sam, Punesh, Renuke & Rob.

Thank you

0 Comments | This entry was posted on May 01 2016

Thank you, thank you for all your support for Lucinda running the Marathon and of course especial thanks to Lucinda.
As the money was coming in I was going through our waiting list and offering families help. Some of these families had been waiting a year! Here are a few of their reactions and thanks to you.

First of all we are overwhelmed and overjoyed in equal measure that The Fred Foundation are able to help us.

Your email has been like a Godsend and at our lowest point miraculously funding could be available to carry us through this difficult time.
So for that we sincerely thank you. Your timing could not have been better.

The people and the organisations who have helped during this time should be aware that their contribution has made a significant difference and Sam would not be the boy he is today without their help.

Oh my God Felicity, can’t believe your email, don’t know how to thank you…it’s amazing!!!!
I was so busy last couple of days, just now seen your email, wow speechless. Thank you ever so much.
God Bless…

FANTASTIC news thank you so much. :-)

I had to fight for my son. He needs ABA. Two years of fighting for ABA. Then without funds I literally felt as though I was in a battle and I had no sword. After all ABA tribunals are evidence based. As I almost gave up,cornered with no options. The Fred Foundation gave me £2000. I heard “you must fight on! do not give up”.
A million thank you’s is not enough. I am a fighter and I could not do this with out your help.
Dear Felcity!!!! omg!!!

I am in the process of lodging my appeal and I run out of funds!! You really have made my day!!! Honestly you have no idea what I am going through!!!

Thank you so much!!
Please keep thinking of The Fred Foundation

https://www.justgiving.com/fredfoundation

Thank you

Cheer her on!

0 Comments | This entry was posted on Apr 23 2016

If you are attending the Marathon in London tomorrow, please cheer on Lucinda if you see her. She is bib number 52983. You can download an app to see where she is . Of course you can still donate to support her as well via the Virgin Money site.

http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=fredfoundation

We might pass the £15,000 mark as we are very close!! Thank you so much if you have already donated. Over the coming weeks I will be posting the comments of the families who directly benefited from your donations, so ‘Follow’ our site and you will alerted to the posts.

Marathon news -help us reach £10,000

0 Comments | This entry was posted on Apr 18 2016

LONDON MARATHON TRAINING SO FAR– BY FRED’S MUM http://uk.virginmoneygiving.com/fredfoundation

I did my last longest run a couple of weeks ago early on a Sunday morning. Moving silently and carefully around the kitchen, getting ready to go I heard a voice behind me, “what’s happening what’s happening?” It was my autistic son Fred whom my creeping around had still woken up.

His terrified faced, eyes welling with tears, all 6ft 3 of him completely naked, made my heart break anew at his vulnerability. I guided him back to his bedroom saying, “Daddy’s in bed, twins are sleeping, Mummy’s going for a run don’t worry darling”.

He got back into bed and then said even more desperately, “What’s happening, what’s happening? Mummy say!.” I repeated it back exactly as I had said it before. “What’s happening, what’s happening?” only came again.

As I repeated back exactly the same explanation a number of times, now close to tears myself, I thought I can’t do this 22 miles today. I’m not in the right frame of mind. Then, he seemed to quieten and lie back and I went.

I began to run, turning to look back at his bedroom window. His pale face was watching me through half-opened curtains and I waved. He didn’t draw the curtain back across until I had gone. I doubled back to check. The curtains were closed.

Now you might think oh well he just didn’t want her to go out like any young child.

My son is 17 and his autism means he just doesn’t understand the world. If things don’t happen in exactly the way he expects them to (and mainly you’re guessing at that all the time because he can’t tell you) then he feels utterly petrified at the uncertainty. Still a little scared boy, a boy who makes routines out of routines.

I know all of this, all of the time, but, seeing his pain doesn’t get any easier. God knows who will care for him after I’m gone is a constant in my head and today his naked vulnerability gets to me more than other days.

I turned my music up very loud.

Later…..back at home thinking ‘how the hell do I run 26 miles on the day after that 22 nearly killed me’, this note pinged up on my donation page.

8.04.16 GOOD LUCK WITH THE RUN AND THANK YOU FRED FOUNDATION FOR ALL THAT YOU HAVE DONE FOR OUR FAMILY WITHOUT YOU JOEL WOULDN’T BE IN THE SCHOOL AND GETTING THE PROVISION HE HAS BENEFITED FROM SO MUCH.

Better do it then.

http://uk.virginmoneygiving.com/fredfoundation