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What would Brexit mean for social care, NHS, and disabled people? ?

0 Comments | This entry was posted on Jun 16 2016

Click on this link to read more  https://www.theguardian.com/society/2016/jun/14/brexit-nhs-health-social-care-disabled-people-eu-referendum

Alongside the economy and immigration, the NHS has emerged as a key battleground in the EU debate. That is because the leave campaign decided early on to deploy the health service as a core argument in their plea to voters. Leave leaders Boris Johnson and Michael Gove have said consistently since campaigning began in April that Brexit could free up up to £8bnextra a year to spend on the NHS.

Leaving the EU would not, however, provide more money to spend on the NHS, according to the Institute of Fiscal Studies. “Rather, it would leave us spending less on public services, or taxing more, or borrowing more.”

Labour has dismissed the leave campaign’s claim of a bigger NHS budget as “misleading, simplistic and complete and utter nonsense”. Its own analysis concludes that a post-Brexit economic slump could force the government to cut the Department of Health’s budget by £10.5bn – the equivalent of every hospital in England having to shed 1,000 nurses and 155 doctors.

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People dont believe us when we tell them what parents have to go through but …..

0 Comments | This entry was posted on Jun 14 2016

People don’t believe us when we tell them what families have to go through to get the correct provision for their child. This article highlights the problem very nicely so please do share.

Baker Small apologises after series of tweets appeared to gloat at parents who failed to win funding of their children’s special needs provision
THEGUARDIAN.COM|BY AMELIA GENTLEMAN

http://gu.com/p/4yx32/sbl

THANKS SO MUCH GUYS #Fredland50….whilst everyone having a nice lazy bank holiday weekend sipping rose etc…….

0 Comments | This entry was posted on May 29 2016

They did it!

“105,456 steps. 53.87 miles. 21 hours 39 mins. Thanks for all the support and donations @SMG_London #Fredland50”
TWITTER.COM|BY TOM MACKENZIE

Come on guys – Doing it again for The Fred #Fredland50

0 Comments | This entry was posted on May 27 2016

As you can probably tell from this photo these guys are totally amazing and are now on the train to The Lakes They’ve raised £2,000 already on this escapade, and well in excess of £5,000 on their last three fundraisers!‪#‎Fredland50‬.

Renuke Manodha Samarasinghe's photo.
Renuke Manodha Samarasinghe with Tom Crichton and 3 others.

4 hrs · London ·

Bags packed, bellies full, legs prepped (not), T-Mack’s game face on, Lakeland50 we are comin’ for you! ‪#‎Fredland50‬ find out about our challenge here – http://bit.ly/Fredland50

Lakeland 50

0 Comments | This entry was posted on May 27 2016

The team from Mediavest have decided to complete another challenge for The Fred Foundation. last year they staggered through the 3 Peaks Challenge. Here is what they have to say….

“So… after about 40 miles of walking and 3000m of ascent last year coupled with sleep deprivation, body’s breaking down and the Welsh weather (see it all here: https://vimeo.com/139697919) it would be foolish to attempt a seemingly longer, physically more demanding challenge this year.

But that is exactly what we are doing. Introducing The Lakeland 50.

50 miles. 3100m of ascent. 24 hours. All in the picturesque setting of the Lake District. Starting at Dalemain House and walking 50 miles to Coniston, it’s the UK’s premier ultra trail challenge and has been described as “one of the greatest ultra running and walking challenges in Europe” so it should be a breeze.

If signal permits we’ll be keeping everyone updated on P Dog moaning about his weak muscles, Sam’s shit chat and Tom Crichton’s sleep deprived animal spotting with #Fredland50.

Any donation, no matter the amount, will make a difference. “Please donate here: https://www.justgiving.com/lakeland-50-shades-of-pain

They are on the train up there right now. Good luck  Tom M, Tom C, Sam, Punesh, Renuke & Rob.

Thank you

0 Comments | This entry was posted on May 01 2016

Thank you, thank you for all your support for Lucinda running the Marathon and of course especial thanks to Lucinda.
As the money was coming in I was going through our waiting list and offering families help. Some of these families had been waiting a year! Here are a few of their reactions and thanks to you.

First of all we are overwhelmed and overjoyed in equal measure that The Fred Foundation are able to help us.

Your email has been like a Godsend and at our lowest point miraculously funding could be available to carry us through this difficult time.
So for that we sincerely thank you. Your timing could not have been better.

The people and the organisations who have helped during this time should be aware that their contribution has made a significant difference and Sam would not be the boy he is today without their help.

Oh my God Felicity, can’t believe your email, don’t know how to thank you…it’s amazing!!!!
I was so busy last couple of days, just now seen your email, wow speechless. Thank you ever so much.
God Bless…

FANTASTIC news thank you so much. :-)

I had to fight for my son. He needs ABA. Two years of fighting for ABA. Then without funds I literally felt as though I was in a battle and I had no sword. After all ABA tribunals are evidence based. As I almost gave up,cornered with no options. The Fred Foundation gave me £2000. I heard “you must fight on! do not give up”.
A million thank you’s is not enough. I am a fighter and I could not do this with out your help.
Dear Felcity!!!! omg!!!

I am in the process of lodging my appeal and I run out of funds!! You really have made my day!!! Honestly you have no idea what I am going through!!!

Thank you so much!!
Please keep thinking of The Fred Foundation

https://www.justgiving.com/fredfoundation

Thank you

Cheer her on!

0 Comments | This entry was posted on Apr 23 2016

If you are attending the Marathon in London tomorrow, please cheer on Lucinda if you see her. She is bib number 52983. You can download an app to see where she is . Of course you can still donate to support her as well via the Virgin Money site.

http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=fredfoundation

We might pass the £15,000 mark as we are very close!! Thank you so much if you have already donated. Over the coming weeks I will be posting the comments of the families who directly benefited from your donations, so ‘Follow’ our site and you will alerted to the posts.

Marathon news -help us reach £10,000

0 Comments | This entry was posted on Apr 18 2016

LONDON MARATHON TRAINING SO FAR– BY FRED’S MUM http://uk.virginmoneygiving.com/fredfoundation

I did my last longest run a couple of weeks ago early on a Sunday morning. Moving silently and carefully around the kitchen, getting ready to go I heard a voice behind me, “what’s happening what’s happening?” It was my autistic son Fred whom my creeping around had still woken up.

His terrified faced, eyes welling with tears, all 6ft 3 of him completely naked, made my heart break anew at his vulnerability. I guided him back to his bedroom saying, “Daddy’s in bed, twins are sleeping, Mummy’s going for a run don’t worry darling”.

He got back into bed and then said even more desperately, “What’s happening, what’s happening? Mummy say!.” I repeated it back exactly as I had said it before. “What’s happening, what’s happening?” only came again.

As I repeated back exactly the same explanation a number of times, now close to tears myself, I thought I can’t do this 22 miles today. I’m not in the right frame of mind. Then, he seemed to quieten and lie back and I went.

I began to run, turning to look back at his bedroom window. His pale face was watching me through half-opened curtains and I waved. He didn’t draw the curtain back across until I had gone. I doubled back to check. The curtains were closed.

Now you might think oh well he just didn’t want her to go out like any young child.

My son is 17 and his autism means he just doesn’t understand the world. If things don’t happen in exactly the way he expects them to (and mainly you’re guessing at that all the time because he can’t tell you) then he feels utterly petrified at the uncertainty. Still a little scared boy, a boy who makes routines out of routines.

I know all of this, all of the time, but, seeing his pain doesn’t get any easier. God knows who will care for him after I’m gone is a constant in my head and today his naked vulnerability gets to me more than other days.

I turned my music up very loud.

Later…..back at home thinking ‘how the hell do I run 26 miles on the day after that 22 nearly killed me’, this note pinged up on my donation page.

8.04.16 GOOD LUCK WITH THE RUN AND THANK YOU FRED FOUNDATION FOR ALL THAT YOU HAVE DONE FOR OUR FAMILY WITHOUT YOU JOEL WOULDN’T BE IN THE SCHOOL AND GETTING THE PROVISION HE HAS BENEFITED FROM SO MUCH.

Better do it then.

http://uk.virginmoneygiving.com/fredfoundation

Why support us?

0 Comments | This entry was posted on Apr 17 2016

I am sure you get many requests for money from Charities far and wide. Why should you support us? Here is one letter that I received from a mother we recently gave a grant to.

I got an email on a Sunday morning as I calculated my personal funds. As a single parent with three young children one with autism.
I found ABA by doing research, out of desperation. Who could help my child?! My GP had no answers, the doctors who diagnosed him had no answers. All they could talk about was speech delay and he didn’t even get one to one speech therapy. My sons behaviour had turned our lives upside down. A simple visit outdoors or visiting friends became impossible. I had no one to turn to. I could not afford ABA. However we needed it. It answered all the questions I had. The consultant became my saviour. As a mother I almost became depressed. My son would have two long meltdowns. I had no idea what to do. With ABA we slowly got a life again. ABA is and was vital for our family. I had to take funds from my other children, no days out, no birthday parties and clothes all from charity shops. I also reached a point where I could no longer afford ABA tutors. I put my young daughter with a childminder £6 per hour and ABA tutors start from £10 per hour and I started tutoring my son. The pressure became too much.
I had to fight for my son. He needs ABA. Two years of fighting for ABA. Then without funds I literally felt as though I was in a battle and I had no sword. After all ABA tribunals are evidence based. As I almost gave up,cornered with no options. The Fred Foundation gave me £2000. I heard “you must fight on! do not give up”.
A million thank you’s is not enough. I am a fighter and I could not do this with out your help.
Thank you for believing in us, my son is not disabled he is different.

We try and give sufficient funds to allow a family to pay for enough ABA so that they have the irrefutable evidence needed to persuade the LEAs to pay for the service themselves. A good number of families have succeeded thanks to our help. Fred’s Mum is running the marathon this year and on our Justgiving page we spotted a familiar name – a family we had helped some time ago. Here is what they said –

16.04.16 Good luck with the run and thank you Fred Foundation for all that you have done for our family without you Joel wouldn’t be in the school and getting the provision he has benefitted from so much.

We regularly run out of funds and have a long list of families waiting for help. We are the only charity doing this job although a much larger charity Caudwell Children often helps our families as well. We have virtually no administrative costs so the money you donate goes straight through to the families.Please consider donating to us today.

Help us win £25,000 through MasterCard/Virgin Money

0 Comments | This entry was posted on Apr 15 2016

http://uk.virginmoneygiving.com/giving/mastercard/?stop_mobi=yes